
by H.D.CRUZ · Asociación de Displasia Fibrosa · tapa blanda · ISBN 9788409263431

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«Mateo izeneko opari bat» is the children's story by H. D. Cruz, published by the Fibrous Dysplasia Association in paperback (54 pages, in Basque).
A children's story that narrates Mateo's life from birth to age ten. At birth, Mateo is diagnosed with fibrous dysplasia and McCune-Albright syndrome, two rare diseases, and the story shows his growth and daily life with them. The edition also aims to raise awareness of these diseases and raise funds for their research.
First edition (2020). Illustrated story, recommended for children aged 3 to 10. Published in Bergara.
A story designed to help children understand fibrous dysplasia and McCune-Albright syndrome, and for families and schools that want to talk about rare diseases with the youngest.
